Pipecleaner Dreams

Last summer, while Ashley was not in school, I was determined to try and reduce/eliminate some of the medications she took. I just felt...

Ashley had her 6 month visit with her neurologist last week. His bedside manner could be described as anything but good, but we have been s...

Being the parent of a child with special needs, especially when some of those needs are medical and life threatening, is a difficult job. T...

MALPRACTICE - failure of a professional person, as a physician or lawyer, to render proper services through reprehensible ignorance or negl...

Ashley’s semiannual visit with her neurologist this week went very well. I was very excited to tell him about weaning Ashley off two of her...

I haven't forgotten to post today, but I am just delaying my post. Ashley's appointment with the neurosurgeon is today. We wil...

I knew this day was coming but I really hoped that it wouldn't. Ashley has LOTS of ear infections, and always has. Through the years, s...

Do you ever feel like you over-react when you child with disabilities gets sick? I definitely do, but I don’t know how to strike a balance....

Do you have a favorite doctor? How would you describe him or her? As parents of children with disabilities, we see a lot of doctors over th...

Ronnie's urologist and nephrologist are both affiliated with the same big teaching hospital in our city. Their offices are one floor ap...

In the last couple of weeks, we've been to a neurologist, a rheumatologist, a nephrologist, and an urologist. I'm really tired of o...

In the last 10 days, Ashley has had an MRI under anesthesia to check for tumors on her brain stem and spine, and she had her 6 month checkup...

Ashley had yet another MRI under anesthesia last Friday. She was already having them twice a year to check the status of the three brain tu...

This weekend my family and I attended the kickoff picnic for another year of Va LEND mentorship. Va LEND is a program of study at our local...

Do you or your children take the medicine Risperidone? It's sometimes called Risperdal. Ashley has been taking it for many, many years...

Since Ronnie came home from the hospital, we have had CNAs (Certified Nursing Assistants) helping with his care. When he first came home, t...

When Ronnie had surgery a month ago, he came home with three different catheters coming from his body. Two were designed to keep his bladde...

Ronnie had his first follow-up doctor's appointment today with the urologist. We were all really hoping that he might agree to remove t...

Today is Dr. McYummy day! Ashley and Ronnie will be visiting their neurosurgeon. I'm anxious to get the results of Ashley's MRI, a...

FRIDAY: Ashley's MRI went ok. She's been having these every 6 months for the past three years, and I hoped that over time she would...