Monday, April 14, 2014

Spring Breaking

It's Spring Break for the kids.  It's also time for flower planting, zoo visiting, ice cream eating, napping, and all those other wonderful things we can do when we don't have school and work!

I hope you all have a wonderful Easter, and I will see you on the other side!


Wednesday, April 9, 2014

Special Exposure Wednesday

No, it wasn't a tornado or hurricane...it's my old, rotting shed during its teardown process...otherwise known as "the source for dead rodents to the delight of my two dogs"!
 
 
 
 

Tuesday, April 8, 2014

Ouch!


I wake up every morning with hands so swollen that they can hardly bend.  They ache, as do my elbows, shoulders, and knees.  Every so often, my hips and feet jump in to enjoy the pain too.  I have rheumatoid arthritis.

I was diagnosed about 10 years ago, and have been through a whole range of treatments – Ibuprofen, prednisone, methotrexate, and several biologics.  The biologics have traditionally been the best, but they usually only work for about two years.  And that’s why right now I am trying yet another, my 4th, biologic.

I began four weeks ago on Orencia.  Unlike the other biologics I have tried that are once a month shots, Orencia is a once a week shot.  Usually when I started on one of the other biologics, I would get relief pretty quickly, but so far on Orencia, I feel worse not better.  I’m not sure what that means, but am really looking forward to my next rheumatology visit in a couple of weeks.

It also seems that Orencia comes with its own unique set of side effects – flushing, back and shoulder pain, and a monster headache that I just can’t seem to shake.  I had no side effects on the other biologics, so I don’t know what makes Orencia so different.

I would love to know if any of you have tried these meds, or have RA (or a similar condition requiring the use of biologics).  What’s worked for you, and what hasn’t.  I’m not young, but I’m also not old enough to feel as bad as I am right now…

Monday, April 7, 2014

Competitor - Winner!

Ronnie competed in the Mid-Atlantic wheelchair games this weekend.  He even came in 1st in his age group in the 100, 200, 400 and 800 meter races!  Way to go, Ronnie!



Friday, April 4, 2014

My Day Begins...

It's 4am.

Time to get up. Get myself showered, hair dried, make up on.

Feed the dogs - one at a time - outside because they are such pigs

Prepare Ashley's morning meds.

It's 5:30 am

Time to wake up Princess Ashley after corraling the dogs back into the house (which recently has involved wiping their muddy feet with a towel).

Pick up the detritus from her night-time partying.

Help her tend to her personal needs. Administer medications, and help her get dressed in the first outfit of the morning.

Make her bed with her help (?).



It's 6am

Start a load of laundry

Rinse out all the medication syringes.

Assist Ashley with her morning yogurt.  Make her two pieces of toast, cut in triangles, crust removed.

Assist her with eating her toast.

Help her to the living room couch where she will take a morning nap while waiting on the school bus.

It's 6:30am

Put away the laundry done the night before.

Pick out three outfits for Ashley for the next day - two for home in the morning, one to go to school.

Vacuum the mud, leaves, etc. brought into the house the previous day by boys and dogs.

Write any notes needed for school.

Pack Ashley's lunch and backpack for school.

It's 6:45 am

Begin a supplemental tube feeding for Ashley, spill some on her clothes (now you understand why we need two outfits for the morning), clean it up and clean feeding supplies.

Make fruit/veggie smoothies for the boys.  Make breakfast for the boys.  Oh wait, make some breakfast for myself too.

It's 7am

Wake boys up.

Nag Ronnie for being so slow.

Take out trash and recycling.

Pack my bags for work, including shutting down my computer and loading everything in my car.

Figure out what I will wear to work the next day and set it out to be pressed in the evening.

Move laundry to dryer.

It's 7:30am

Wake the princess up from her morning nap, and help her tend to her personal needs.

Locate the objects of her desire to be used while waiting for the bus - some days it's blocks, some days it's starry wires, some days I never figure it out.

Set the living room couch and the rest of the room to a reasonable state of neatness (I hate coming home after work to a messy house!).

Continue to nag Ronnie to move a little faster.

It's 8am

Wait by the front door for the school bus which sometimes come at 8:10, sometimes 8:20, and sometimes 8:30.

Put my darlings on the school bus and head to work.

It's 8:45

Begin (?) my work day

Thursday, April 3, 2014

Spring Has Sprung

And this sums up exactly how I feel!!!