Friday, August 30, 2013

DMV Hell

Yesterday I went to Hell and back - twice. Yes, that would be our DMV office (Department of Motor Vehicles).

All I wanted was ID cards for Ronnie and Ashley. It will be a while before Ronnie has a driver's license, and Ashley never will have one unless some new technology allows a blind person to drive, so I wanted something official with their picture on it.

I thought it was a fairly simple and straighforward process. Chip looked up on the DMV website what documents we would need (a lot!), and printed out forms to be filled out. We were the first customers of the morning, and because I was so organized, or at least as organized as the DMV website told me to be, we were assigned the first clerk at the DMV within just 60 seconds. His name is Mr. Chuckles. Well, not his real name, but the name I have assigned to him. I and two of my children have dealt with him in the past, and trust me, the sarcastically assigned name of Mr. Chuckles fits him to a tee.

Mr. C started reviewing all our paperwork, turned pages over and over, typed into his computer monitor, and finally said, "I have a problem here." When I quizzed him as to what the problem was, he said I needed a court document showing that Ronnie and Ashley had had their names changed. Seeing as I adopted Ashley over 16 years ago when she was 2 years old, I have no idea how she got into the DMV 'System' with any name, much less her birth last name. Mr. Chuckles wasn't in the sharing mood, and wouldn't tell me anything other than I needed the court papers. I retorted that it would have been nice has such information been on the DMV website, but Mr. C just gave me the blank stare he has obviously spent many years perfecting.

So off we went, back home to find copies of the final adoption papers for Ronnie and Ashley, papers which also addressed the name change. Then it was back to DMV for a repeat of the morning's process except that now it was very crowded and the wait time was long. The good news is that we weren't assigned to Mr. Chuckles.

Our newly assigned clerk took all the papers I had brought, keyed everything into her computer (surely there has to be a better way..), and then said she was going to take Ashley's and Ronnie's pictures. It was all good until the clerk kept asking Ashley to look up at the light. I kept reminding the clerk that Ashley was both blind and deaf, but that seemed to not be sinking in. She took probably a dozen pictures when finally I looked at one and said, "that one's good enough." Then it was Ronnie's turn. As with Ashley, we had specifically asked for HEARING-IMPAIRED id cards - sort of a clue that neither one could hear. But the clerk continued to speak orders to Ronnie, who just sat there and smiled. While there may not be many blind people who frequent the DMV, I feel pretty confident that Deaf people do. Is it this difficult for every Deaf person who needs to do business with the DMV?

Eventually we finished, paid $10 for each ID card, and were sent on our way. We were told the cards should arrive in the mail in about 10 days. Sure hope that is true...I don't think I can take another visit.

Thursday, August 29, 2013

Danceability

I love this group, and so wish something like it could be formed where I live.  I bet Ronnie and Ashley would love to participate!

Wednesday, August 28, 2013

Special Exposure Wednesday

The Happy Tail tale continues. Thanks to my very smart friend, Amy, we found Vetwrap at our local feed and seed store. Cooper's Happy Tail wasn't healing, so we wrapped it in gauze and Vetwrap. Hopefully it will now have a chance to get better. Unfortunately, he seems afraid of his red tail now. Every time he glances behind himself, he jumps when he sees his tail!

Tuesday, August 27, 2013

Just 26 People

How insanely cool is this?!  Now if I can just find 26 people who each have $1000 and want to share the experience of a lifetime...


Monday, August 26, 2013

Really?

About 6 months ago I applied for social security disability for Ashley. The application process was very confusing, but fortunately the person assigned to her case was very helpful. She explained the process to me and got information about all of Ashley's doctors and schools which she had attended. She also told me that it would take a while because her office would have to contact all those people, and there are indeed a lot of them, and once they heard back, she would be back in touch with me.

Finally last week, 6 months after our original conversation, I heard from her. She told me that Ashley would need to see two doctors of their choosing, and that information about the appointments would be mailed to me. I admit I was a little confused, but in the interest of keeping things moving, I said 'OK'.

I got the paperwork in the mail last Friday. Ashley is scheduled to see both an eye doctor and an ear doctor. Now I really am confused. Is social security doubting that Ashley is deafblind? Were the reports from her eye and ear doctors not sufficient? And honestly, if anyone from social security would just meet Ashley, the fact that one of her eyes is totally white and the only way she can see with the'good' eye is to bring something about an inch away from it would make it more than obvious that she is blind, and if they stand behind her and yell, they would have no problem understanding that she is deaf.

So, confused we will go to the two doctor appointments. At least I do need to give social security props for choosing doctors that are not too far away from our home...

Friday, August 23, 2013

No Limits

I think we need to send this to every school superintendent in every school district in the U.S. What do you think?

Thursday, August 22, 2013

Supplying the School


When you have children with significant disabilities and medical issues, the term 'school supplies' takes on a whole new meaning. Yes, we need a few of the regular things - markers, folders, glue sticks, etc. But we also need:
  • a spare g-tube
  • lubricant for the spare g-tube in case it must be used
  • bottles of medicine
  • syringes for administering the medicine
  • signed forms from the doctor saying it is ok to administer the medicine
  • extra catheters
  • lubricant for the catheters (different than the lubricant for the g-tube)
  • child and adult sized incontinence products
  • wipes and more wipes
  • tissues to further the misconception that they will help keep my children from catching illnesses
  • hand sanitizer (see above)
  • clorox wipes (see above)
  • Afrin nasal spray for stopping out-of-control nosebleeds
  • feminine hygiene products and ibuprofen for when those feminine hygiene products are needed
  • several extra pairs of clothing
  • the all important lists of all the doctors, diagnoses, surgeries, medicines, preferred hospitals, and insurance information that must accompany my children wherever they go
  • and all the other stuff I just can't remember right now but will remember as soon as the bus pulls away from our house that first day of school
What about you? What does your school supply list look like?