Thursday, July 31, 2014

Wednesday, July 30, 2014

Aren't You Sorry You Asked?

It's been a rough summer. You could probably tell that based on the lack of posts to this blog. So, here's a quick summary, and a promise to try to start doing better...

Ashley's ESY/summer school ends tomorrow. The best thing about summer school this year? The bus driver. Other than that, I have no idea who Ashley's teacher was, whether or not she had the 1-on-1 signing aide she was supposed to have, what she did, whether she ate lunch, whether she got her medicine every day, etc. etc. There was no contact with a teacher for the entire session, and no progress notes sent home. Needless to say, this will be Ashley's last year attending summer school.

Ashley also started a day support program. She would attend for a few hours in the afternoon Monday through Thursday (summer school days) and all day on Friday. There have been the usual bumps along the way, but Ashley does seem to enjoy her time there. I believe it is a promising place for her to spend next summer.

Ronnie became bored two days after the school year ended and summer began. Chip tries very, very hard to keep Ronnie busy and occupied, but Ronnie isn't holding up his end of the deal. When Chip plans an outing, Ronnie will complain and say he wants to stay home. When they stay home, Ronnie will complain about being bored. This does not bode well for the time after Ronnie graduates from high school. He really needs to take some responsibility for his life and show some motivation, but so far that is not happening. For the moment, I am writing it off as teenaged angst, but I can't do that much longer.

And my health hasn't been good all summer. I don't know exactly where the problem exists, but my rheumatologist can't seem to get my medicines straight. It could be a problem with the pharmacy (it is a specialty pharmacy, you know, those ones where they charge even more outrageous amounts for meds) or with my insurance, but I don't know. If I knew, I could go to battle, but so far no one is sharing any information with me. As a result, my joints are screaming in pain and I am dealing with extreme fatigue. Throw into that mix my job and its accompanying off-the-chart stress level, and all I want to do is sleep.

So those are all my excuses for a rotten summer and the reason I haven't written. Hopefully my next post will be a little more positive...