I'm still battling the flu, and I am sure you don't want an entire post detailing the coughing, sneezing, body aches and fever. But here are a few random things that have popped up during my recovery. I'm sure I will cover some of them in more detail when I'm back to my well self.
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Finally, finally I have gotten a cat scan scheduled for Ashley's hip, leg and foot. Yea, the one that has been swollen since last October!!! I still don't know what the insurance company's problem was, but I have decided to take it for what it is and find the money to pay for it later. Oh, and the weather forecast for next Wednesday, the day of the scan, is calling for a snowstorm. Go figure.
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I have a surprise announcement about Ashley and an award she will be receiving! I haven't gotten the official notification yet, but I did receive a phone call letting me know she had won. Although I am about to burst with wanting to tell you about it, I need to wait for the official notification..
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All Ronnie's excuses about not being able to do some of his chores are no longer going to work. After receiving his standing wheelchair, I haven't found anything he isn't able to do. Take that, teenage laziness!
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How can it be that Chip is graduating from college (!) in just a few short months. Didn't I just attend his high school graduation?? Oh, and anyone with a job in the Information Systems field, please keep him in mind!
Enough for now - my comfy counch and blanket are calling my name. Hopefully I will be back to a regular posting schedule soon. Hope all of you have avoided the flu this year....
"One can never consent to creep when one feels an impulse to soar." - Helen Keller
Thursday, February 28, 2013
Monday, February 25, 2013
Sportable
I've got the flu and my brain is not working well enough to write an intelligent or meaningful post. So instead, I am going to share this documentary produced by undergraduate broadcast journalism students in the School of Mass Communications at Virginia Commonwealth University. It's all about Sportable, the organization that has made such a difference in Ronnie's life:
ATM: The way my kids take care of me when I am sick...
ATM: The way my kids take care of me when I am sick...
Friday, February 22, 2013
"They were wrong"
Saying this video is brilliant just doesn't do it justice. It's more, much more, than that.
ATM: Watching Chip lie down next to our dog, Cooper, while they both fell asleep...
ATM: Watching Chip lie down next to our dog, Cooper, while they both fell asleep...
Thursday, February 21, 2013
Bloodletting
This past Monday was a school holiday and a day off from work for me. And as I usually do on days off, I scheduled as many doctor and other medical appointments as I could. One of the scheduled events involved going to Solstas Labs to get blood drawn for Ashley's upcoming visit with her neurologist.
In our city we have one megalab company with many locations around town. However, even though I have tried several of the locations, we have never had a positive experience. Surprisingly (at least to me), megalab was uncomfortable trying to draw blood from a child with significant special needs, including difficult-to-find veins. Then I found a smaller company that did an excellent job.
In 2007, desperate to have a more positive lab experience for Ashley, we tried the only other company in our city. Then called Carilion Labs, the experience was wonderful. I chronicled all the wonderful things in this post. If was a few years after that when Carilion became Solstas, and unfortunately, our good experiences have not continued.
Ashley has to have blood drawn every three months. Not including this past Monday, the experiences were difficult at best. One of the times, we even had to come back three times just trying to get 4 test tubes of blood. Each of those difficult times, the staff person was the same. So when I walked in Monday morning and saw her again, I was not happy.
The staff person is of Asian descent. I mean nothing by that, but am only trying to paint a picture for you of our experience. When we first walked in, I asked why all the handicapped parking places had been blocked off. The staff person (lab tech?) said, "I don't know, but there are other close parking places." She was correct, but none of those spaces were available. She just responded with, "Oh."
She then took my insurance cards and lab ordering instructions, and after 6 tries at copying the documents, finally succeeded. But this time, Ashley was starting to quietly cry.
The lab tech (staff person?) told us to come on back, and asked, "Why is she crying already? I haven't done anything yet?" I explained that Ashley knew what was about to happen and that was why she was crying. The tech then told me to get Ashley to sit in their special chair. Of course, it would have been nice if she had spoken to Ashley, even if I had to sign what she was saying, but she didn't. I told her that moving Ashley to the chair was not a good idea, and that previously her blood draws were always done with her sitting in her own wheelchair. The tech sighed heavily, and said, "Well, then this may not work."
At that point, she reached out to grab Ashley's arm and put the blue tourniquet on it, and of course, that's when things really started to go downhill.
First, you do not reach out and just grab Ashley's arm, or anyone's arm for that matter. Second, I mentioned that this was going to be difficult, and that we needed a second person to assist. The tech said she could handle it, but everytime Ashley pulled away from her, the tech jumped and acted like Ashley was intentionally trying to hurt her. The tech then said, "You have to keep her still." I chuckled softly, and said it was difficult to hold her, hold her wheelchair, comfort her, and also try to sign instructions to her. I suggested again that she recruit some help.
Another tech was walking by and heard our discussion. She stepped in to assist, and really seemed to know what she was doing. She was firm but considerate with Ashley. When the first tech again said Ashley needed to be still, the second tech said, "Get over that, she's not going to be still. You just have to work more quickly."
With the solid comfort of the second tech, Ashley did begin to settle down, and finally the first tech was able to get the blood drawn.. You see, Ashley doesn't mind getting stuck and having blood drawn. What she minds is people coming at her and not telling her anything, people tugging on her and restraining her without some explanation.
When all was done, the first tech handled Ashley a bandaid and told her to put it on. Say what???!! I told her Ashley would not tolerate bandaids and that they just needed to apply pressure until the bleeding stopped. She pushed a wad of gauze at me and said, "Here, you do it."
Carilion Labs, I don't know why things changed? Were you bought out? Whatever the reason, things have not been good since Solstas took over. And Solstas, even though your website states you are "a caring, client-centered pathology team dedicated to patient care", Ashley and I don't see it that way.
Here's hoping Solstas is bought out by a company that is a lot more like Carilion.
ATM: The excitement in Ronnie's eyes when receiving his new standing wheelchair.
In our city we have one megalab company with many locations around town. However, even though I have tried several of the locations, we have never had a positive experience. Surprisingly (at least to me), megalab was uncomfortable trying to draw blood from a child with significant special needs, including difficult-to-find veins. Then I found a smaller company that did an excellent job.
In 2007, desperate to have a more positive lab experience for Ashley, we tried the only other company in our city. Then called Carilion Labs, the experience was wonderful. I chronicled all the wonderful things in this post. If was a few years after that when Carilion became Solstas, and unfortunately, our good experiences have not continued.
Ashley has to have blood drawn every three months. Not including this past Monday, the experiences were difficult at best. One of the times, we even had to come back three times just trying to get 4 test tubes of blood. Each of those difficult times, the staff person was the same. So when I walked in Monday morning and saw her again, I was not happy.
The staff person is of Asian descent. I mean nothing by that, but am only trying to paint a picture for you of our experience. When we first walked in, I asked why all the handicapped parking places had been blocked off. The staff person (lab tech?) said, "I don't know, but there are other close parking places." She was correct, but none of those spaces were available. She just responded with, "Oh."
She then took my insurance cards and lab ordering instructions, and after 6 tries at copying the documents, finally succeeded. But this time, Ashley was starting to quietly cry.
The lab tech (staff person?) told us to come on back, and asked, "Why is she crying already? I haven't done anything yet?" I explained that Ashley knew what was about to happen and that was why she was crying. The tech then told me to get Ashley to sit in their special chair. Of course, it would have been nice if she had spoken to Ashley, even if I had to sign what she was saying, but she didn't. I told her that moving Ashley to the chair was not a good idea, and that previously her blood draws were always done with her sitting in her own wheelchair. The tech sighed heavily, and said, "Well, then this may not work."
At that point, she reached out to grab Ashley's arm and put the blue tourniquet on it, and of course, that's when things really started to go downhill.
First, you do not reach out and just grab Ashley's arm, or anyone's arm for that matter. Second, I mentioned that this was going to be difficult, and that we needed a second person to assist. The tech said she could handle it, but everytime Ashley pulled away from her, the tech jumped and acted like Ashley was intentionally trying to hurt her. The tech then said, "You have to keep her still." I chuckled softly, and said it was difficult to hold her, hold her wheelchair, comfort her, and also try to sign instructions to her. I suggested again that she recruit some help.
Another tech was walking by and heard our discussion. She stepped in to assist, and really seemed to know what she was doing. She was firm but considerate with Ashley. When the first tech again said Ashley needed to be still, the second tech said, "Get over that, she's not going to be still. You just have to work more quickly."
With the solid comfort of the second tech, Ashley did begin to settle down, and finally the first tech was able to get the blood drawn.. You see, Ashley doesn't mind getting stuck and having blood drawn. What she minds is people coming at her and not telling her anything, people tugging on her and restraining her without some explanation.
When all was done, the first tech handled Ashley a bandaid and told her to put it on. Say what???!! I told her Ashley would not tolerate bandaids and that they just needed to apply pressure until the bleeding stopped. She pushed a wad of gauze at me and said, "Here, you do it."
Carilion Labs, I don't know why things changed? Were you bought out? Whatever the reason, things have not been good since Solstas took over. And Solstas, even though your website states you are "a caring, client-centered pathology team dedicated to patient care", Ashley and I don't see it that way.
Here's hoping Solstas is bought out by a company that is a lot more like Carilion.
ATM: The excitement in Ronnie's eyes when receiving his new standing wheelchair.
Wednesday, February 20, 2013
Special Exposure Wednesday
This gigantic origami structure hangs at the Lewis Ginter Botanical Gardens. It is about the size of a Volkswagen Beetle, and ever so beautiful!

ATM: The smile in my heart when Ashley teacher told me that Ashley kept asking for me today.

ATM: The smile in my heart when Ashley teacher told me that Ashley kept asking for me today.
Tuesday, February 19, 2013
Why?
This past long weekend was spent nursing sick kids. Both Ronnie and Ashley had very bad colds that I was worried were taking a turn for the worse. There was a lot of Tylenol, decongestant, and chicken soup passed out. Not wanting to share their germs, my hands are pretty much raw now from so much hand washing, but it must have worked because so far, I haven't gotten sick (knock on wood!). We now have a fridge full of antibiotics, and Ronnie and Ashley seem to be getting better.
I did have to take Ashley for some blood work for an upcoming visit with her neurologist. It didn't go well, but I will save that for a later post. Today I just had to post a picture of the parking lot at the lab. It's not the best picture because I took it out my car window. But as you can see, ALL the handicapped parking places as well as the sidewalk access lane were blocked off. I have no idea why, and no one could tell me why. But it's things like this that just make my blood boil...

ATM: The way Ashley lays her head against my shoulder when she is not feeling well.
I did have to take Ashley for some blood work for an upcoming visit with her neurologist. It didn't go well, but I will save that for a later post. Today I just had to post a picture of the parking lot at the lab. It's not the best picture because I took it out my car window. But as you can see, ALL the handicapped parking places as well as the sidewalk access lane were blocked off. I have no idea why, and no one could tell me why. But it's things like this that just make my blood boil...

ATM: The way Ashley lays her head against my shoulder when she is not feeling well.
Friday, February 15, 2013
The Start of My Own Basketball Team
My school district does many things well. That has not always been the case, but with leadership changes over the past 5 years or so, things are better for my children and other students receiving special education services. And in particular, the school that Ronnie and Ashley attend is great.
Ashley has a tee shirt from the school that says, "Tucker High School - Unity in Diversity." And that concept is real at Tucker High School. It is the reason I chose this particular high school, now 50 years old and showing its age, over the shiny, new schools recently built in our district. Diversity and acceptance are universal themes at the school. And now I have the perfect example to show you want I mean.
During basketball season, several of the schools in our district field teams comprised of special ed students. The school teams come together every Thursday to play a game against each other. Ashley's teacher sent me a link yesterday of a video that the school had made of one of those games. The link is below, but before you click on it, here are a few notes.
The video has extra stuff on it. Once you open it, fast forward to the 3:04 position. That is the start of the piece about the basketball games. At around 3:26, you will see my daughter, Jessica. She plays for an opposing school, and is the one in the purple uniform with a number 2 on it. Then at the 3:40 mark, you will get a quick glimpse of my son, Ronnie. He is the one in the wheelchair. Again at the 4:20 position, you will see Ronnie. At 4:40, you will see my sweet Ashley making a basket. At 4:50, basketball star Ronnie makes a basket, and at 5:10, Jessica makes a basket!
J.R.Tucker is a very special school! Here's the link: School Matters video
ATM: Showing this video to my co-workers and watching them dab the tears from their eyes.
Ashley has a tee shirt from the school that says, "Tucker High School - Unity in Diversity." And that concept is real at Tucker High School. It is the reason I chose this particular high school, now 50 years old and showing its age, over the shiny, new schools recently built in our district. Diversity and acceptance are universal themes at the school. And now I have the perfect example to show you want I mean.
During basketball season, several of the schools in our district field teams comprised of special ed students. The school teams come together every Thursday to play a game against each other. Ashley's teacher sent me a link yesterday of a video that the school had made of one of those games. The link is below, but before you click on it, here are a few notes.
The video has extra stuff on it. Once you open it, fast forward to the 3:04 position. That is the start of the piece about the basketball games. At around 3:26, you will see my daughter, Jessica. She plays for an opposing school, and is the one in the purple uniform with a number 2 on it. Then at the 3:40 mark, you will get a quick glimpse of my son, Ronnie. He is the one in the wheelchair. Again at the 4:20 position, you will see Ronnie. At 4:40, you will see my sweet Ashley making a basket. At 4:50, basketball star Ronnie makes a basket, and at 5:10, Jessica makes a basket!
J.R.Tucker is a very special school! Here's the link: School Matters video
ATM: Showing this video to my co-workers and watching them dab the tears from their eyes.
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