Monday, August 24, 2009
Not Steve Martin's Jerk
Just when you think things may be settling into the usual crazy routines....something new pops up. That always seems to be the case with Ashley's seizures. We find a medication, or multiple medications, that help for a while - sometimes a long while. Then out the the blue, things change.
For the last week or so, Ashley has been 'jerky'. Usually early in the morning and again at night before bedtime. At first, I didn't know a better way to describe it than the word 'jerky' or strong 'twitches'. She'll be sitting and playing or watching TV, and her upper body will jerk - equally on both sides. I've also seen it start up again during dinner.
These jerks don't seem to bother her, and in fact, sometimes she seems to think they are funny. And to someone not used to the many types of seizures, it can look a little funny. But knowing how Ashley's seizures have changed over her life - different types, shorter or longer, etc. - seizures were the first thing that popped into my mind.
So, after picking the brain of my dear friend, Lynnette, who has also addressed the 'jerks', I believe what Ashley is experiencing is myoclonic seizures.
So, do we need more medicine? Different medicine? Less medicine? I guess the neurologist will answer those questions for me. Has anyone else had experience with these types of seizures? I would love to hear from you...